Date of Award

2016

Document Type

Thesis

Degree Name

Bachelors

Department

Humanities

First Advisor

Flakne, April

Keywords

Beauchamp, Tom, Prenatal Diagnosis, Informed Consent

Area of Concentration

Humanities

Abstract

In the first chapter, I develop an account of substantive informed consent drawing from Tom Beauchamp’s 2010 article, “Autonomy and Consent.” I add four stipulations to his “Condition of Understanding” to guide the qualities of text information given to expecting mothers with the goal of accounting for the realities of situated life. I contend that text information must: (1) be accessible to readers, (2) explicitly contextualize the biomedical setting, (3) present the social model of disability, and (4) express a neutral or positive sentiment about people with disabilities. In the second chapter, I analyze seven pieces of literature from local doctor’s offices and the Internet with reference to how they succeed or fail in fulfilling the four stipulations. In the third chapter, I respond with my own presentation of information in a smartphone app, guided by the account of informed consent and analysis of existing literature from the first and second chapters. I accompany my app with an analysis and narrative in which I evaluate my own work.

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